Sickle Cell Foundation of Palm Beach County & Treasure Coast, Inc. is a family-oriented, charitable, nonprofit organization dedicated to helping all people affected by the extremely serious health problem of sickle cell disease.
What is the sickle cell disease?
It’s a group of disorders that affect red blood cells, making them hard and sticky (and shaped like sickles), and preventing their movement, which, as a result, can lead to infections, organ damage, anemia and other problems.
The disease is inherited and affects 1 in 12 African-American. It’s most common in African-Americans, but is not limited to just that ethnic group. Our organization serves an area that’s home to more than 30,000 persons who are affected by the sickle cell gene.
Sickle Cell Foundation’s purpose is to provide a range of services for sickle cell disease/trait clients and their families:
- Community Voice: coordinate community volunteers in targeted zip codes to educate residents about healthy births and reduce black infant mortality.
- Case management: provide appropriate medical/healthcare referrals, as well as counseling to assist clients in learning about their illness and methods of controlling the disease and managing its pain.
- Educational: conduct presentations and seminars for medical, education, health/human services professionals, and the general public.
- Support Groups: offer support group activities and the promotion of educational and recreational normalization activities.